The journey begins

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Imagine you’re a seventeen year old girl. You enjoy doing things with your friends, and you enjoy school, most of your classes anyway. Life is good.

Suddenly you begin experiencing pain in your hands every morning. Your fingers are stiff and swollen; they look like little, fat sausages. When you walk across the room, it feels like you’re stepping on sharp rocks. Constant pain puts a damper on your appetite and you begin to lose weight.

Now imagine being told you have a crippling disease that will change your life. I was that young girl; the disease was rheumatoid arthritis (RA).

Rheumatoid arthritis is a life-changing disease. However, I didn’t know how much it would effect my life when the doctor told me I had RA. For forty years, I have experienced struggles and triumphs that have weakened my body, but strengthened my character and  my faith. It’s been an interesting journey and I’m going to share some of it with you.

So, fasten your seatbelt and get ready for the ride!

If you have questions, comments, or feedback don’t hesitate to add them below.

 

I have what?!? (Brain aneurysm)

The end of 2015 was a rough time for me. Two very important things happened in October. I was diagnosed with Hashimoto’s thyroiditis and I took a very devastating fall. I will discuss the Hashi’s in a later post, but right now I want to talk about the fall.

I’ve fallen before, in fact at least two other times in the last 40 years. (That doesn’t sound like a bad set of odds to me.) However, this tumble turned out to be frightening. This time I banged my head against the linoleum floor opening up a big gash in my forehead. Needless to say, I panicked–foreheads can bleed profusely when cut. SInce you could see the bone, we decided I should go to the emergency room.

At the ER, I explained that I had a dizzy spell, so the doctor decided to run a CAT scan. On the scan they saw what they thought might be an aneurysm in the brain, and ran an MRI. Unfortunately, the results showed I did have an aneurysm .

I was immediately referred to a neurosurgeon who, after looking at the MRI, decided to do an angiogram. An angiogram is a procedure where they insert dye through an artery into the brain in order to see more clearly what’s going on, sort of a 3D image.

The results of the angiogram suggested that, although I may have had the aneurysm for a while, it is growing 3 to 4% larger every year and needs to be taken care.

There are two ways to take care of an aneurysm. One is to cut open the skull to go in and clipped it so it doesn’t get any more blood. The other way is to go through the same artery that they used for the angiogram and insert coils into the aneurysm. The coils helps the blood clot, also stopping more blood from entering the aneurysm. The second option is less invasive and you can leave the hospital in a day. Thankfully, it is this second procedure that the doctor said he will be able to do on me.

Treatment doesn’t stop there, though. For the next few years I will have to have an MRI done every six months to make sure everything is okay, and I will have to take an aspirin daily for the rest of my life.

This is a scary time for me right now. It is still brain surgery,even though he doesn’t go directly into the brain through the sKull. Obviously, there are risks with this procedure. The doctor went through the list of things that could happen before verify that I was still willing to go through the procedure. Considering the alternative, doing nothing and waiting for it to burst, which could lead to disability or death, I think I’d rather go with the brain surgery.

Right now, I’m waiting for the procedure to be scheduled. I’m nervous, but I know that I have one of the best doctors in the country doing the work. However, I’m still putting my trust in God because He is the actual one in control.

Please pray with me that the doctors hands are skillful and the procedure is successful.

BTW, it’s taken me a while to write this post, because it’s so much to process. I hope I explained it clearly. If you have any questions, or comments, feel free to leave them below. I appreciate you all, and want to thank you for being here for me.

To clear up any confusion

I wanted to let you know, if you ordered this ebook a couple of years ago

 

Rheumatoid Arthritis:A Life-Changing Disease

my new book Diagnosed at Seventeen My Struggles and Triumphs Living With Rheumatoid Arthritis is the updated version. I’ve added more chapters (it now has around 15 chapters), and more personal stories as requested.

You will probably get an e-mail from Amazon telling you about the new update. Don’t be confused because the email will have the new title listed.

Go ahead and update, it’s like getting a new book for free.

Another step taken…

I finished another step towards publishing my book this week. Over a month ago, I got back the manuscript from Lindsay, my editor. She had gone through it word-by-word, and line-by-line, editing grammer and punctuation. My task was to then go through and correct the errors. The work was exacting and eye-straining, but I finally finished it. I sent it back to Lindsay a couple of days ago. I’m eager to discover what the next step in the process is.

line-by-line

Lesson Learned

As I sit here, I have swollen, sore fingers and an achy body. Yesterday I decided to eat a waffle with syrup and peanut butter, knowing the sugar was going to bother me. To top it all off, I had a popsicle later that night! I know that sugar bothers me. But the craving was just too much. So today, I pay the consequences.

Eating healthfully is a process. One that will take a long time for me to master. However, I don’t intend to give up. I know that eventually my cravings for sugar will go away. I know this because most of my cravings for dairy foods are gone after just a few weeks of not eating them. Although, the ice cream I saw on TV last night looked pretty good. 🙂

Food as Medicine

I’ve had RA for over forty years and followed the doctors’ advice without question. Results… all major joints replaced, deformed hands and fused neck, GERD, IBS and who knows what else. I took every med available and felt fine. Now, I’m not saying things would be different if I hadn’t followed traditional medicines protocol, and I’m glad it kept me moving all these years. However, I’m tired of the risky side effects and symptoms the medicines carry with them.

In April I stopped my Enbrel…with my rheumatologist’s permission and am now trying a healthier diet. Six months later I’m feeling great and only needed an ibuprofen a few days in that time.

food as medicine quote by Hippocrates
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Last Chapter of Book Sent to Editor

awesome   Awesome news! I finished the last chapter in my book and sent it to my editor, Lindsay, today (July 30, 2014). I know, I know, I’ve said it was done in the past, well the manuscript truly is finished this time. When I get this section back from her, my book is ready for line editing. I don’t expect a lot of red ink to flow, though, because she did a lot of that during this development editing stage. (BTW: If you need a great editor, Lindsay at http://www.youhavemyword.net/ is fantastic!)

It’s now time for me to think about a cover. I suppose it should have my picture on it. 🙂 Oh, and the other things a book needs: dedication, author information, etc.

I decided that I’m going to enter the manuscript into a contest where first prize is a publishing contract. The deadline is August 30. Wish me luck.

Life is what you make it (A Short Story)

 

what path will you travelThe disease ravaged her body and lowered her self-esteem. Her nights were spent in the bar. The alcohol eased the pain and dulled her mind. The attention filled her heart and warmed her body. The truck drivers called her Margarita Girl—her drink of choice. The music vibrated through her like a siren’s song, enticing her to swing and sway. Stopping only long enough to take another drink, she danced through the night.

Blue Eyes Crying in the Rain spoke to her soul…but hers were green. No matter, the story was the same. Two men loved her, two men begged for her hand. Two men broke her heart—that damned disease scaring them away.

She lived a wild life—lost weekends, hidden memories, only known to a few. She ached for love, finding none. Her life was in shatters.

“I must get free. I must flee this place.” A new outlook. A new attitude. She straightens up. Life is bright and her mind is clear. Saved from despair; healed and repaired. She changes course and…finds true love!

Remember life is what you make it.