I’ve had RA for over forty years and followed the doctors’ advice without question. Results… all major joints replaced, deformed hands and fused neck, GERD, IBS and who knows what else. I took every med available and felt fine. Now, I’m not saying things would be different if I hadn’t followed traditional medicines protocol, and I’m glad it kept me moving all these years. However, I’m tired of the risky side effects and symptoms the medicines carry with them.
In April I stopped my Enbrel…with my rheumatologist’s permission and am now trying a healthier diet. Six months later I’m feeling great and only needed an ibuprofen a few days in that time.
Learned that by sending my book, Diagnosed at Seventeen My Struggles and Triumphs Living with Rheumatoid Arthritis, to the Reminisce magazine memoir contest, the winners won’t be announced until December. The book is required to stays unpublished until after that date. 🙁
Awesome news! I finished the last chapter in my book and sent it to my editor, Lindsay, today (July 30, 2014). I know, I know, I’ve said it was done in the past, well the manuscript truly is finished this time. When I get this section back from her, my book is ready for line editing. I don’t expect a lot of red ink to flow, though, because she did a lot of that during this development editing stage. (BTW: If you need a great editor, Lindsay at http://www.youhavemyword.net/ is fantastic!)
It’s now time for me to think about a cover. I suppose it should have my picture on it. 🙂 Oh, and the other things a book needs: dedication, author information, etc.
I decided that I’m going to enter the manuscript into a contest where first prize is a publishing contract. The deadline is August 30. Wish me luck.
The disease ravaged her body and lowered her self-esteem. Her nights were spent in the bar. The alcohol eased the pain and dulled her mind. The attention filled her heart and warmed her body. The truck drivers called her Margarita Girl—her drink of choice. The music vibrated through her like a siren’s song, enticing her to swing and sway. Stopping only long enough to take another drink, she danced through the night.
Blue Eyes Crying in the Rain spoke to her soul…but hers were green. No matter, the story was the same. Two men loved her, two men begged for her hand. Two men broke her heart—that damned disease scaring them away.
She lived a wild life—lost weekends, hidden memories, only known to a few. She ached for love, finding none. Her life was in shatters.
“I must get free. I must flee this place.” A new outlook. A new attitude. She straightens up. Life is bright and her mind is clear. Saved from despair; healed and repaired. She changes course and…finds true love!
Do you ever experience a time when, although you’re content, you think your life is boring? Well, that’s the way I’m feeling this week. I’m feeling stressed because I don’t have anything interesting to post and frankly, it’s getting harder to think of things to share with you.
Don’t get me wrong, I’m not looking for a life of daring and adventure, but when the highlight of your week is going to the dentist, well–and the report wasn’t even that good. Doctors’ visits are my most frequent type of outing.
As I continue to write my book, I realize that up until the time I quit working, I had a more active social life. Of course most of it revolved around my job, but then the other tutors were my friends, too.
Not that I don’t have friends now, I do. I have coffee, or go to lunch with one of them three or four times a year. (Hi Bernadette!) In fact, we met last Wednesday for coffee, but we won’t see each other again until August.
However, I will push forward. I might skip a weekly update, but I won’t give up. It is the journey that is important, not where we end up.
I appreciate you and want you to know it. Hang in there with me. As the song goes “The best is yet to come…”
The last couple of weeks have been a struggle for me. I’ve experienced fatigue every afternoon. I noticed that by one or two o’clock my body had begun to feel limp and my eyes refused to stay open. I know that this is normal for people with rheumatoid arthritis. We are told to ‟rest frequently” and not ‟over do it.” However, this is not normal for me.
Unless I’m sick, I don’t take naps. I am active throughout the day, writing, watching television, or playing on my computer. Having the urge–no, the need—to lie on the sofa and rest is rather disconcerting.
Why am I so tired? Being a logical person, I had to analyze the situation. After some thought, I’ve come up with two possible reasons.
I was taking prednisone for ear problems and when I finished the prescription, my body was in withdrawal. One of the side effects of prednisone is feeling antsy and nervous.
I’ve been off my Enbrel since April 13. It is possible my RA is causing the fatigue. Not taking anything except ibuprofen for pain may have created more activity.
I’m happy to report that I am feeling more energetic this week. Enough so, that I was able to work on my book and sent files to my editor. Looking at my list, I see that there are only four chapters left to rewrite. Yay!
How has you week been? I’d love to read your comments.
I had great news at my eye doctor’s appointment last Tuesday. He told me my eyes were looking better than he as ever seen them. I didn’t have any filaments in either eye. (Great news, since my left eye usually has a few.)
When I told him that occasionally my lower eyelids get red and chapped, my eye lashes look wet, and colors look brighter, with more noticeable contrast between them, he said that seemed to be a good sign, possibly my eyes are trying to make tears again.
It is amazing, because when I first saw this doctor, my eyes were so dry and damaged, he thought he was going to have to scrap the tags off the cornea.
The months–no years–of eye drops, both OTC and prescription, is starting to show progress in healing my eyes. I probably will never have perfect tear production again, but knowing that I can reduce the symptoms if I’m aggressive, keeps me going.
Some of you asked if they could get this slide show in report form. Yes! If you sign up for my mailing list I will send you the link to Simple Steps to Manage Rheumatoid Arthritis. If you are already subscribed and want the report, send me and email and I’ll send you the link.
The following is an excerpt from my upcoming book. I hope you enjoy reading it. If you want more, sign up to my mailing list. Not only will you get emails alerting you to new content on the site, you’ll also receive a copy of my ebook Rheumatoid Arthritis: A Life-Changing Disease. This ebook is the ‟appetizer” before the meal. It describes some of my experiences coping with RA. Continue reading →
Having RA has help me become more patient. I have never enjoyed waiting on people. If I say I’ll be somewhere at a specific time, I want to be there at that time. Since I have to rely on others for transportation, that is not always possible. Continue reading →