A New Life

open book diagnosed at 17 excerpt The following is an excerpt from my upcoming book. I hope you enjoy reading it. If you want more, sign up to my mailing list. Not only will you get emails alerting you to new content on the site, you’ll also receive a copy of my ebook Rheumatoid Arthritis: A Life-Changing Disease. This ebook is the ‟appetizer” before the meal. It describes some of my experiences coping with RA.
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Enbrel Stopped working?

syringe
RA is a despicable disease! One day you’re feeling okay, the next it knocks you on your butt. I went to my rheumatologist today for my regular check-up. Felt crappy and told her so.. After checking me out and discussing my problem, we decided that perhaps my Enbrel isn’t working anymore.
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Don’t lose heart

I wanted to write an upbeat, cheerful post this week. I hoped to bring you a positive story about how my life was easy and free flowing last week. However, I’d be lying. Over the last seven to ten days my body has been screaming for attention—not that it doesn’t get enough attention already; but it wants to be front and center. That is the nature of any chronic illness, and certainly rheumatoid arthritis. So, settle in and let me tell you about my week.

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Metal and Plastic

picture of me

“I am the real bionic woman.” At least that’s what my family calls me. As a result of my rheumatoid arthritis, every major joint in my body, and a couple not so major, is now made up of metal and plastic. In fact, in 1982 four of them were replaced. The first two, my knees were done in January, 7 days apart. I tell everyone my many surgeries paid a large portion of the cost to build the hospital’s parking garage. And, as the years pass, I continue to pay for the maintenance costs.
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I Contacted a Publisher

I was listening to a podcast by Michael Hyatt called This Is Your Life Podcast. The topic was My Best Advice for First-Time Authors. (This subject was covered in two parts #21 and #22) Michael used to be a CEO at Thomas Nelson Publishing. He helped start WestBow Press, a division of Thomas Nelson & Zondervan. WestBow specialize in assisting the self-publishing author get their book ready for publication: designing, editing, marketing, etc.

The next day, I visited their site and filled out a form requesting more information. A representative called me and we chatted for a few minutes. I told him how I learned about the company, explained that I wasn’t quite ready to publish yet and was exploring my options. He was friendly and asked questions that I hadn’t considered. Before hanging up, he told me he would contact me again in a few weeks to see how my book is progressing.

I’m excited about the step I took. It makes the book more of a possibility and less of a dream.

Challenges with RA and Life

 

My left ear started to hurt on Sunday. I’ve had a lot of problems with my ears and nose in the past few years. I’m having trouble hearing and had a tube put into the left ear about two years ago. After leaving the office, I realized that my right ear had a loss of hearing too! It wasn’t too bad, so I didn’t go back to have it checked.

Throughout this time, my hearing has fluctuated from good to bad. My nose is almost always stuffy and it runs a lot. I get an injection of Enbrel once a week. This is a drug that suppresses the immune system. Therefore, I can easily catch or develop something.
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Daylight Savings Time–Necessary? Or Not?

Daylight Savings Time-Necessary? Or Not?

 
I’m getting started late today. We in the US turned our clocks ahead one hour for Daylight Savings Time (DST) this last weekend. I think Arizona and Hawaii are the only two states that don’t observe this practice. Because of the loss of an hour, my body clock, along with many others, is still off kilter. For me it takes about a week to adjust. Regaining the hour in the Fall when we go back to regular time has its challenges too. I won’t go into that right now, though.
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Memory Flashes

orange moving truck

 

It’s interesting how memories emerge when your focused on trying to remember past events. Like scraps of paper with snippets of scenes written on them. Not developed yet, but intriguing enough to invite further examination.

For example, I remember a trip I took with my brother, Rod, our friend Sandi, and her three boys. We all crammed into the cab of a U-Haul truck, the trailer filled with all our earthly belongings, and my cat. Continue reading

I meditate to relieve pain

body, mind, spirit quote MEDITATION

 

Rheumatoid arthritis can be a painful disease. Some days more so than others. Occasionally, I’ll wake up feeling so much sore that, even after taking a couple of extra ibuprofen, I don’t get relief. I describe those times as feeling like I’d ‟been French-kissed by a Mack truck.” A time when every movement, every touch, or every breath screams pain. Over the years, I’ve learned that the only way to ease the pain is through meditation. I find that relaxing my body and calming my mind reduces the tension of tight, achy muscles which helps me get past it..

When people think of meditation, they often picture someone sitting in the lotus position—legs crossed and arms folded across their chest—repeating an obscure sound or word in a chant-like way. Well, that isn’t how I do it. First, there is no way I can sit in that position. Second, I’d feel foolish repeating something over and over.
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