When I wrote this post Shots, Oh My! I was getting weekly Enbrel shots for my RA. Two years ago I was able to wean myself off the shots. I now control my RA with a more natural method. I try to eat a “clean” diet–no processed foods, gluten, dairy, soy, and very little sugar. I manage pain with turmeric, ginger, and the recently discovered thyme tea works.
I still struggle , especially when I’m frustrated or depressed. My last post Chronic Disease Sucks! was written during one of those dark times.
I know many people with chronic disease are unable to follow a natural diet and need to take medications. I’m not against this, as everybody is different. I just pray, that whatever they’re doing , their disease is under control and the pain is being managed.
The disease ravaged her body and lowered her self-esteem. Her nights were spent in the bar. The alcohol eased the pain and dulled her mind. The attention filled her heart and warmed her body. The truck drivers called her Margarita Girl—her drink of choice. The music vibrated through her like a siren’s song, enticing her to swing and sway. Stopping only long enough to take another drink, she danced through the night.
Blue Eyes Crying in the Rain spoke to her soul…but hers were green. No matter, the story was the same. Two men loved her, two men begged for her hand. Two men broke her heart—that damned disease scaring them away.
She lived a wild life—lost weekends, hidden memories, only known to a few. She ached for love, finding none. Her life was in shatters.
“I must get free. I must flee this place.” A new outlook. A new attitude. She straightens up. Life is bright and her mind is clear. Saved from despair; healed and repaired. She changes course and…finds true love!
I had great news at my eye doctor’s appointment last Tuesday. He told me my eyes were looking better than he as ever seen them. I didn’t have any filaments in either eye. (Great news, since my left eye usually has a few.)
When I told him that occasionally my lower eyelids get red and chapped, my eye lashes look wet, and colors look brighter, with more noticeable contrast between them, he said that seemed to be a good sign, possibly my eyes are trying to make tears again.
It is amazing, because when I first saw this doctor, my eyes were so dry and damaged, he thought he was going to have to scrap the tags off the cornea.
The months–no years–of eye drops, both OTC and prescription, is starting to show progress in healing my eyes. I probably will never have perfect tear production again, but knowing that I can reduce the symptoms if I’m aggressive, keeps me going.
Some of you asked if they could get this slide show in report form. Yes! If you sign up for my mailing list I will send you the link to Simple Steps to Manage Rheumatoid Arthritis. If you are already subscribed and want the report, send me and email and I’ll send you the link.
RA is a despicable disease! One day you’re feeling okay, the next it knocks you on your butt. I went to my rheumatologist today for my regular check-up. Felt crappy and told her so.. After checking me out and discussing my problem, we decided that perhaps my Enbrel isn’t working anymore. Continue reading →
I wanted to write an upbeat, cheerful post this week. I hoped to bring you a positive story about how my life was easy and free flowing last week. However, I’d be lying. Over the last seven to ten days my body has been screaming for attention—not that it doesn’t get enough attention already; but it wants to be front and center. That is the nature of any chronic illness, and certainly rheumatoid arthritis. So, settle in and let me tell you about my week.
My left ear started to hurt on Sunday. I’ve had a lot of problems with my ears and nose in the past few years. I’m having trouble hearing and had a tube put into the left ear about two years ago. After leaving the office, I realized that my right ear had a loss of hearing too! It wasn’t too bad, so I didn’t go back to have it checked.
Throughout this time, my hearing has fluctuated from good to bad. My nose is almost always stuffy and it runs a lot. I get an injection of Enbrel once a week. This is a drug that suppresses the immune system. Therefore, I can easily catch or develop something. Continue reading →
Rheumatoid arthritis can be a painful disease. Some days more so than others. Occasionally, I’ll wake up feeling so much sore that, even after taking a couple of extra ibuprofen, I don’t get relief. I describe those times as feeling like I’d ‟been French-kissed by a Mack truck.” A time when every movement, every touch, or every breath screams pain. Over the years, I’ve learned that the only way to ease the pain is through meditation. I find that relaxing my body and calming my mind reduces the tension of tight, achy muscles which helps me get past it..
When people think of meditation, they often picture someone sitting in the lotus position—legs crossed and arms folded across their chest—repeating an obscure sound or word in a chant-like way. Well, that isn’t how I do it. First, there is no way I can sit in that position. Second, I’d feel foolish repeating something over and over. Continue reading →
I received a letter from the Social Security Administration in the mail today; it was a “Disability Evaluation” form. They wanted to know if I was “still disabled.”
All I had to do was fill in the needed information and send it back Seems simple enough, right? Wrong! I needed to provide all my visits to clinics and hospitals, plus any surgeries I’ve had…since October 2011! Continue reading →
I have written the introduction to my book Diagnosed at Seventeen.
I’m seventeen years old, enjoying my senior year of high school. I’m hanging out with my friends, going to football games, and having a good time. I like school, most of my classes anyway. Life is good. Suddenly I begin experiencing pain in my hands every morning. My fingers are stiff and swollen; they look like little, fat sausages. When I walk barefoot across the room, it feels like I’m stepping on sharp rocks. Constant pain puts a damper on my appetite and I begin to lose weight.