I debated on whether I should move this post from ruthiespoonemore.com. After some thought, I finally decided to do it, so here is.
The following is a section I’ve added to my book, Diagnosed at Seventeen My Struggles and Triumphs of Living with Rheumatoid Arthritis. I hope you enjoy reading it.
Entered my book into the Writer’s Digest Self-Published Book Awards. Although I didn’t win, I got some nice comments from the judges which I wanted to share with you. I copied and pasted the email body text here so you can read it. I’m happy with what the judges had to say. I know I did a good job in writing it. Continue reading
Learned that by sending my book, Diagnosed at Seventeen My Struggles and Triumphs Living with Rheumatoid Arthritis, to the Reminisce magazine memoir contest, the winners won’t be announced until December. The book is required to stays unpublished until after that date. 🙁
Do you ever experience a time when, although you’re content, you think your life is boring? Well, that’s the way I’m feeling this week. I’m feeling stressed because I don’t have anything interesting to post and frankly, it’s getting harder to think of things to share with you.
Don’t get me wrong, I’m not looking for a life of daring and adventure, but when the highlight of your week is going to the dentist, well–and the report wasn’t even that good. Doctors’ visits are my most frequent type of outing.
As I continue to write my book, I realize that up until the time I quit working, I had a more active social life. Of course most of it revolved around my job, but then the other tutors were my friends, too.
Not that I don’t have friends now, I do. I have coffee, or go to lunch with one of them three or four times a year. (Hi Bernadette!) In fact, we met last Wednesday for coffee, but we won’t see each other again until August.
However, I will push forward. I might skip a weekly update, but I won’t give up. It is the journey that is important, not where we end up.
I appreciate you and want you to know it. Hang in there with me. As the song goes “The best is yet to come…”
The last couple of weeks have been a struggle for me. I’ve experienced fatigue every afternoon. I noticed that by one or two o’clock my body had begun to feel limp and my eyes refused to stay open. I know that this is normal for people with rheumatoid arthritis. We are told to ‟rest frequently” and not ‟over do it.” However, this is not normal for me.
Unless I’m sick, I don’t take naps. I am active throughout the day, writing, watching television, or playing on my computer. Having the urge–no, the need—to lie on the sofa and rest is rather disconcerting.
Why am I so tired? Being a logical person, I had to analyze the situation. After some thought, I’ve come up with two possible reasons.
- I was taking prednisone for ear problems and when I finished the prescription, my body was in withdrawal. One of the side effects of prednisone is feeling antsy and nervous.
- I’ve been off my Enbrel since April 13. It is possible my RA is causing the fatigue. Not taking anything except ibuprofen for pain may have created more activity.
I’m happy to report that I am feeling more energetic this week. Enough so, that I was able to work on my book and sent files to my editor. Looking at my list, I see that there are only four chapters left to rewrite. Yay!
How has you week been? I’d love to read your comments.
The following is an excerpt from my upcoming book. I hope you enjoy reading it. If you want more, sign up to my mailing list. Not only will you get emails alerting you to new content on the site, you’ll also receive a copy of my ebook Rheumatoid Arthritis: A Life-Changing Disease. This ebook is the ‟appetizer” before the meal. It describes some of my experiences coping with RA.
Having RA has help me become more patient. I have never enjoyed waiting on people. If I say I’ll be somewhere at a specific time, I want to be there at that time. Since I have to rely on others for transportation, that is not always possible.
RA is a despicable disease! One day you’re feeling okay, the next it knocks you on your butt. I went to my rheumatologist today for my regular check-up. Felt crappy and told her so.. After checking me out and discussing my problem, we decided that perhaps my Enbrel isn’t working anymore.
I wanted to write an upbeat, cheerful post this week. I hoped to bring you a positive story about how my life was easy and free flowing last week. However, I’d be lying. Over the last seven to ten days my body has been screaming for attention—not that it doesn’t get enough attention already; but it wants to be front and center. That is the nature of any chronic illness, and certainly rheumatoid arthritis. So, settle in and let me tell you about my week.
“I am the real bionic woman.” At least that’s what my family calls me. As a result of my rheumatoid arthritis, every major joint in my body, and a couple not so major, is now made up of metal and plastic. In fact, in 1982 four of them were replaced. The first two, my knees were done in January, 7 days apart. I tell everyone my many surgeries paid a large portion of the cost to build the hospital’s parking garage. And, as the years pass, I continue to pay for the maintenance costs.