How do feel about the word “disability?”
Someone asks me that question every so often. Recently it came in an e-mail from my editor. She was talking to a woman who is blind with an aromatherapy and massage business when she asked the woman if it was difficult to run her business with her ” disability.” My editor said that the woman “seemed very troubled by the use of the word.” This business owner said she focuses on what she can do and thinks of her business as an “ability.” After talking about it, they decided that the word didn’t seem like a nice word — “more like a misleading, judgmental label.”
I told her I agree; I don’t like its use either. I prefer to say I have “limited abilities” or some “physical challenges.” The words “disabled person” sounds like the person can’t do anything for themselves. And that is the sad part, so many people see what we CAN’T DO instead of what we CAN DO.
A couple of posts ago I told you my book was finished and I wanted readers to preview it. Well, guess what; I’m not done writing!
I hired an editor who looked at it and suggested I expand on a few places. Yes, I know that’s what another editor said and I rejected her suggestion. However, this lady actually gave clear, sensible ideas and even pointed out where, and possibly what, to add.
Therefore…my book is still in the writing process. I promise next time to not “jump the gun” and tell you I’m finished before I’m actually done and ready to publish.
So, onward and upward. Keep reading and leaving comments. Your feedback keeps me encouraged.
I sat down last night to do some free writing. I didn’t have a specific subject in mind; I just knew it would be related to my life with RA. After some initial rambling, my theme focused in on money–more specifically my use of money.
I know I posted recently that my book Diagnosed at Seventeen wasn’t going to be finished any time soon. However, I busted my butt these last three days and finished it…yay!
I’m now trying to recruit a couple of people to read the manuscript and give me feedback. My weaknesses are punctuation and grammar. My post on Facebook didn’t give any results. Any suggestions? I don’t think i need to hire a professional editor, but…
I have written the introduction to my book Diagnosed at Seventeen.
I’m seventeen years old, enjoying my senior year of high school. I’m hanging out with my friends, going to football games, and having a good time. I like school, most of my classes anyway. Life is good. Suddenly I begin experiencing pain in my hands every morning. My fingers are stiff and swollen; they look like little, fat sausages. When I walk barefoot across the room, it feels like I’m stepping on sharp rocks. Constant pain puts a damper on my appetite and I begin to lose weight.
If you have bought my e-book, Rheumatoid Arthritis: A Life-Changing Disease, on Amazon, then you know that I am writing another book and thought it would be done by the end of the year. Well, it looks like that’s not going to happen.
I contacted an editor to get an idea of what is involved in the editing process. She advised me to continue writing because my story is too short for a traditional print book. In fact she said I needed to double the number of words. Therefore, I’ve added a couple more sections. Continue reading
One day, several months ago, I searched the internet for other blogs on the subject of living with rheumatoid arthritis. There were quite a few listed, however, I was looking for more personal blogs, written in a first person point of view. I wanted to feel like the writer was talking to me. I discovered two blogs that were entertaining as well as informative. I decided to share them with you here. (My friend Kelly MCcausey at SoloSmarts calls this “link love”)
Someone once told me that if you ask God for patience, you better be prepared for anything. I think that goes for everything you ask Him.
I don’t like shots, never have and never will. I have come close to blacking out from a shot in my foot once. Shots make me tense up, even so much that, in my earlier years with RA, I was prescribed the Gold Shots treatment. I got them every other week. Only three times though, because i developed a huge black and blue bruise at the injection site. Needless to say, the doctor changed my treatment to pills. In fact, I took many different kinds of pills over the years trying to bring my disease under control.
It was cold that day; snow and ice covered the ground. Mixed feelings of fear and excitement filled me as I walked the few blocks from the hotel to the Mayo Clinic in Rochester, Minnesota. Excitement because I was at the Mayo Clinic, a famous medical institution. Fear because I had an appointment with a specialist to discuss the possibility of surgery on my hands. A surgery that was to be the first of many to repair the destruction rheumatoid arthritis would do to my joints.
Welcome to my blog. I hope you enjoy reading about my journey with rheumatoid arthritis. Please sign up for my mailing list to get updates by email.